Yo soy La Lay

adventures in family, faith, and Down syndrome

Helpless, hopeless

on September 14, 2015

To sit and watch babies lose their Early Intervention therapies left and right is gutwrenchingly painful.

Do you hear me???!!?!

I cannot understand what our state has come to.  I cannot understand a world in which we cast aside those who need us the most, to be nothing but a political pawn in a game of war that we can only lose.

This is not a liberal or conservative issue.  It is about human rights.

I am well aware that a somewhat vocal minority believe that it has been my choice to have a child with special needs.  You could have aborted her, they say.  (Yes, they literally say that)  And then there would be no expense for therapy.  There would be no expense, no argument for Early Intervention.  She’s just an expense.  Not a human being.  There are people who cast us aside and feel that we are owed nothing because we can contribute nothing.

We are owed nothing.  I understand this.  But we contribute.

What world do we live in that civilized human beings will shun needy children?  What world do we live in that politicians continue to push down on the disabled and the hurt and the suffering and play with the very real power that they have to devastate an entire population?  What is going on with a world where not getting a lottery payout is national news, but thousands of children being abandoned is not even covered somewhere on page 12??

Family and friends shake their heads from afar… Oh, that’s a pity they say.  I’m so sorry to hear this, those (fill in derogatory term) politicians…  They get mad, and move on in their day…. We cannot.  We live waiting for the letter that terminates services.  We watch our dear friends lose their lifelines.  And it hurts us to know that we are alone in this battle.

Do something.

I implore you.

Don’t tell me that this is just temporary or that it’s just a publicity stunt.

Make a phone call.

Don’t tell me that money has to be cut somewhere, so just deal with it.


Babies.  We are talking about babies.

Make a call.



4 responses to “Helpless, hopeless

  1. Ugh. This post makes me sick to my stomach. So sorry, friend.

  2. Oneinamillion says:

    I am struggling for what to type here. This sort of thing fills me with rage. And it’s not just in the USA, it’s everywhere. That attitude, the one which says you could have aborted, so it’s all on you, that’s why parents like me panic when they discover their child has extra needs. Because we know that the support isn’t there. That governments don’t actually care. That in the end it is on us. And of course we will do it, but these are babies, like you say, they are human beings who need us. It’s not fair. And yes, we need to be more vocal about it. DO something about it.

  3. I’m sorry this is happening 😦
    On another note I wanted to say thanks for joining 31 for 21.

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