Yo soy La Lay

adventures in family, faith, and Down syndrome

Tubes, Take 2

I think a lot of my readers are Facebook friends… but for those who aren’t, or those who are and want more details of today’s events…. here we go:

We are home after successful tube placement and bronchoscopy.

The morning was, as usual, not without it’s fair share of drama. We have a family history of some complications with general anesthesia.  As the anesthesiologist explained, “it’s very rare that someone would have any type of reaction, but if they do, they usually die. So we’re going to go with a slightly less safe type of IV anesthesia that takes a little longer so that we don’t run the risk of the other reaction.”

Well, that’s comforting.

John was not able to be there today, so very thankfully, my mother-in-law came to keep me company… and to calm me down. She is awesome at chatting away the time and before I knew it, the doctor was back to let me know that Tessa was doing well.

So, the tubes are in and should fall out on their own in (hopefully) a year to 18 months. She doesn’t have to wear ear plugs unless she is in a lake or river, but I don’t see that being an issue for her. 🙂 The bronchoscopy didn’t show any abnormalities, which is good. This means that Tessa’s airways are formed correctly. She had a bit of redness on her vocal cords, which he explained could be from crying or reflux. He said that a swallow study would be a good follow-up to check out the mechanics of how she eats.

It took a little while for her to wake up following the procedure. One of our nurses told us that “people with Downs love their sleepy drugs!” I think some people might not like that kind of generalizing statement, but I am totally OK with it. 🙂

Tessa is in good spirits, happy to be reunited with her bottle, and is her happy self already. Ellie was thrilled to come home from daycare and find her sister back in the house again. She immediately requested to hold her, something that she almost never does, so I’ll wrap up with some sweet pictures of these two little buddies!

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Imagination

Ellie lives in her own little world and we are just characters in the game. Lord help you if you wake her up from her occasional nap and call her Dora on a day when she is actually Doc McStuffins. I found myself in that situation late this afternoon.

It wasn’t pretty.

With no TV to distract us these days and John working late coaching track, Tessa and I have been at the mercy of Ellie’s imaginary play. Today, we were Doc McStuffins. Or, to be more specific, Ellie was Doc, Tessa was Stuffy (a goofy blue dinosaur), and I was Hallie (a chubby purple hippo with a southern accent. Lucky me!).

http://youtu.be/COhezyZhcOE

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Tessa isn’t quite sure what just happened to her, but she’s glad it’s over. 🙂 (These last two pics were just too cute not to post!)

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Sisters

Before Tessa was born, I was often asked how Ellie felt about having a baby. She’s two, so the reality of what a sibling would do to the family dynamic is not something that she had any way of comprehending, but she made one thought very clear: we were to bring home a baby girl, or the baby would not be welcome in our family.

Thank God that we got the right gender!!

Ellie adores our baby…. probably too much at times. To her, Tessa is just the cutest little bean and requires about 47,000 kisses per hour. She talks to her in a ridiculous voice, holds her little hands… May we all remember to treat her as “normally” as Ellie does!!!

I do think often about their future together. It’s probably the one area that actually causes me a substantial amount of anxiety. I never want to parent Ellie less, expect more of her, or put too much on her shoulders. However, I can’t help but pray that this little toddler will grow into a champion for her sister. I’m not naive enough to think that Tessa will never have to deal with teasing or feeling left out… nor do I really expect that Ellie will always be the one to come to her rescue when times are tough. However, when I picked Ellie up from her daycare on Friday, I couldn’t help but smile at the exchange I heard between my eldest and another little girl:

Girl: Hi Autumn!! (The name of another little baby)
Ellie, very upset: No! That is Tessa! Do NOT call her Autumn, that is not her NAME!!! She is Tessa!

You go girl.

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