Tessa is doing much better. She is not home yet, but will be soon.
This story is not about that.
Today, as I signed myself out of the Pediatrics ward, three nurses (none of whom were actually looking after Tessa) were discussing genetic testing.
Nurse #1: Well, my sister is having the tests. She’s older… She just wants to know.
Nurse #2: Yeah, I get that. I just didn’t.
Nurse #3: Well, I couldn’t have a kid like that. That’s just too much. I’m definitely testing someday.
This isn’t a piece about whether I’m for or against testing. It’s not about my feelings about abortion. It’s not meant to be religious or preachy… But it is a little bit about hurt feelings.
So to Nurse #3, a medical professional taking care of sick kids like mine, I just want to say the following:
Hey! Those “kids like that??” The ones you don’t want or can’t deal with? My baby, the one in room three that all you nurses oooh and aaah over… well, she is one of those kids. And I get it, Special Needs are challenging and overwhelming. But look around you. You are a nurse, frequently taking care of children like mine, and I can hear you. I can hear you saying that you’d rather not have a baby than have one like mine. And it hurts my feelings. Not because I think you are a bad person, but because you are caring for my child and you’ve put her into a box of unmanageable people. So please, when you decide to tell the world, in a giant open room filled with strangers, that you can’t deal with kids like mine, know that you are hurting a momma who believes very strongly that her child has a life worth living. You get an opinion. So do I. But a little caring and consideration for those who might have to hear you would go a long way. Because I was in a place I couldn’t leave. I couldn’t just switch to a different website or turn off the TV. Talk to your husband, your family, your girlfriends about it. Make your choice. But when you work, please be more sensitive. Because I love my girl. And I want the rest of the world to know that they can love her, too. She’s not “too much.” Just the way she is, she is perfect.








