Yo soy La Lay

adventures in family, faith, and Down syndrome

DSAM17 – Day 3 – Walking

In the womb, Tessa was my most active baby.  I remember feeling her squirm around very early in my pregnancy, and after that, she was never still.  Every moment was filled with kicks and rolls – at her 20-week ultrasound, our tech said it was the most active little one that she had ever tried to measure.  All day and all night, never a rest.

In the NICU, they called her “the swimmer.”  She never stayed flat on her UV light mat to treat her jaundice, kicking and flailing in her little isolette.  The hospital PT was quite impressed. 

She rolled at three weeks.

She had an amazing four-point crawl.  Still does, actually.

But walking?  No.

I didn’t know it would be so hard.  She started out so strong and I just didn’t know.

On this day last year, Tessa was not standing or walking independently.  She inched closer and closer to her third birthday and showed no sign of these elusive milestones.  And it was hard, y’all.  She was heavy and I was newly pregnant and exhausted, emotional, frustrated.

But then she walked… no, ran!  There was no walking, and then all the sudden, she took off.  As is most growth with Tessa, she pushed me to the farthest edge of my ability to not totally freak out, then broke through.  

Such is life with this child.  And I love her for it.  

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DSAM17 – Day 2 – On being a sister

When Ellie cries (which is pretty often), Tessa seeks her out, rubs her back, and tells her it is going to be ok.  She’s not particularly good at helping clean up the playroom, but she lets Ellie boss her around, sitting through book after book and lesson after lesson in their pretend school.

(We never worry about reinforcing school at home because Ellie is ON IT.)

Tessa and Ellie argue, but Tessa is quick to apologize.  She is the only person who can wake Ellie in the morning without being scolded.  She is gentle and patient when we are not.

With Lauren, she is loving and protective.  She comes to find me if Lauren needs something.  “Mom, Warren spit up.”  “Mom, Warren hungry.”  “Mom, I hold Warren please?”  She adores her.

I wasn’t sure how Tessa would interact with her siblings.  At her birth, I became quite fixated on the relationship that she would have with Ellie.  The moments in which I am the most overwhelmed are always when I feel like I am failing both girls by not being able to meet either of their emotional needs.  From day one of her life, I worried that Tessa would consume me in a way that left little for her sister – and that her sister, in return, would be jealous at best.

What I have found instead is that when my heart is pulled more to one child or the other, so too is theirs.  Ellie knows when Tessa needs more, and she gives more in those moments.  Tessa does the same.  Is there jealousy or sadness, irritation, frustration?  Of course. But overwhelmingly, they care for each other.  Down syndrome is there, in the background, but their relationship has nothing to do with that one extra chromosome that makes Tessa different and everything to do with the other 46 that they have more in common.

So surprise, healthy sibling relationships are not out of the question.  Like all relationships, they have to be nurtured and cared for, but have no doubt that there’s a whole lot of sister-ing going on in this house. 

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DSAM17 – Day 1 – The diagnosis

This is probably the most silly thing to be surprised by, but with as many people as there are in the world, I can’t be the only one who felt this way.

The first surprise that Down syndrome has given us is that Ds can be a birth diagnosis.

For many of you, I feel like this is a “well, duh” moment.  For me… well… the idea of such an occurrence never crossed my mind.  I had always assumed that if something were “off” with the baby, our prenatal ultrasound at 20 weeks would have shown it.  This is a small part of the reason that those first several hours after her birth were so rattling for me – I couldn’t understand how no one had any idea of this prior to birth.

I have learned a lot since then.

This past year when we were preparing for Lauren’s arrival, we once again chose to forgo the prenatal testing, this time with a more solid understanding that at birth, something could be atypical.  I still maintain that if we were to go back, we still wouldn’t have done any testing prior to Tessa’s birth.  I am certainly pro-information for those who want to prepare for the unexpected, but for our family, uncertainty is a type of stress that we would be very challenged by.

Looking back on that silly, smushy face on the ultrasound machine, I am even more amused at the surprises she had in store for us.  Being a girl, coming early, being a blonde, having Down syndrome… take your pick.  That birth day was anything but ordinary.


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Ready, set, go… Year 3

31 days of blogging for Down syndrome awareness month…  on my iPhone.

Yikes.

We don’t have a working computer these days, but I’m determined y’all. Starting tomorrow, we’re covering 31 surprises about life with Down syndrome.  Please bear with me on the formatting.. and the typos.. and all of the joys that come from doing this without an actual keyboard.

If you have missed us, my apologies.  I have missed you too!  I have been so itchy to write, and really can’t wait to bust out of my technology-failure-induced-rut.  There’s so much to say!!

Here we go!

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Winding up for the Wind-Down

Be still my heart.  As I stood in the kitchen making dinner, Tessa wandered in, no doubt looking for a snack.

“Momma?  Where Daddy, Lauren, and Ellie?”

It was clear as day, even the word “and.”  The question word “where,” the list of names… It makes everything worth it – every moment at home, being here as a family, adjusting to each other again, hammering through – worth it.

To be honest, there was a small amount of trepidation in the fact that we declined Extended School Year services.  My gut knew she didn’t need it, but with the exception of deciding to marry my husband, there hasn’t ever been a decision in my life that I haven’t over-evaluated.  So with this sweet little question, I feel vindicated.

This summer, we expected some chaos.  Add a new human to the house and there will be madness.  We did not expect the sleep study, or the ER visits for my gallstones, then subsequent hospital stay for the removal of my dead gallbladder, nor the Do-It-ASAP-Tonsil-Removal that so neatly wrapped up our summer of medical madness.

It could be so much worse.  It was enough, and we are tired, and Lord, it could be worse.

The tonsil surgery went well, all things considered.  There were some rough moments coming out of the anesthesia, and we are still struggling to get Tessa to accept her oral meds as easily as she once did.  Still, my own annoyance at watching Frozen and Moana on repeat 18 hours a day since last Thursday afternoon is really the only struggle that has come from the healing process thus far.  I have heard that days 7-10 can be awful, when the scabs fall off, but our ENT told us that she has “small stalks” on which her tonsils were growing, so the recovery shouldn’t be as bad as it could be.

So after all of this, we’re ready for some rest and quiet.  I’m heading to my DSDN Rockin’ Mom Retreat this coming Friday and it could not be coming at a better time.  Last year, I hopped on a plane and flew to Dallas for an amazing weekend connecting with other moms.  This year, the fun is coming to me in Chicago.  I spent a little time this afternoon reading through my blog post from last year about the trip and thinking about how fabulous I felt coming home from a weekend of connecting with these women.  I am so very ready for that feeling again, and feel pretty lucky to have the opportunity to go.  I’m terrified to be home on my own with all three children on my own, so I’m thankful that John is willing to be the first to try it – and I’m sure that after this weekend, I’ll owe him some time away as well. 🙂

I feel like there is so much to do between now and Friday when I leave school and head up to the retreat – packing and organizing, wrapping up loose ends at home so that things can be seamless here, planning in advance at work so that the Monday after the retreat is smooth-sailing… it’s a wind-up in order to wind down, but it is so worth it.  And since we’ve been on full-throttle for some time now, I’m not sure it will feel much different than how life just is for us in this season.  But the relaxation, the conversation, the unrushed breakfast and wine with friends… it’s coming.

Rockin’ Moms Retreat, let’s go!  ❤

 

 

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My Beach Body

My Beach Body has stretched to grow three humans.  It has a hefty amount of stretch marks and a tummy that looks kind of like a deflated balloon.  It’s smushy and cozy and not on my list of “immediate concerns.”

At not-quite six weeks post-partum, my Beach Body is ready for the bathing suit I just bought to accommodate a pooch.  It is ready to splash in the pool with my girls and to enjoy a wine spritzer while lounging in an Adirondack chair and reading Rachael Ray magazine.

Next summer, my Beach Body will likely still need that same suit and that is OK.

You see, my Beach Body, which looks nothing like the Beach Body of my early 20s, is healthy and fulfilled.  It enjoys a lean protein and vegetables for lunch and dinner, but also the chocolate that follows once the kids are in bed.  My Beach Body now is not longing to fit the size 4 wedding dress stashed in my daughters’ dress up bin.  It isn’t even reminiscing about all the size 6 pants that I donated when Tessa was born.  It thinks a little about the 8s and 10s that are in the back of the closet, but is comfortable in maternity shorts and size 12 for now.

Twice a week, sometimes more, my Beach Body takes a walk around the neighborhood, all by itself, and truthfully, rocks out to those boy bands from the early 2000s that I still can’t quite get enough of.  It doesn’t go quickly, or break into a jog, but it moves.  It shows my girls that they can take a moment to breathe, to be in solitude, and to step away from the world’s chaos for 30 minutes.

My Beach Body wants my precious girls to know that they can go to a birthday party and enjoy a piece of cake.  It walks those girls to the ice cream stand down the street and does not feel guilty about a chocolate-dipped cone with sprinkles.  It doesn’t need wraps (thanks no thanks, random Facebook acquaintance that I haven’t spoken to in 10 years) or shakes.  It doesn’t believe in cheat days, but in moderation.  It feels balanced.  Chubby and healthy and balanced.

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Eight <3

Eight years gone by in a flash.

Cookies and walks on Monday evenings.

Breakfast before 7:30 class.

Sushi dinners.

Ironing tiny ribbons for Save the Dates.

Clearing the absurd back log on our DVR.

Driving through the mountains in your mom’s Mustang, top down.

Wandering through Barnes and Noble.

Bon fire nights.

Opening our Christmas gifts two days early.

Surprise road trips to the QCA.

Rockin’ our babies.

Morning text messages with emojis and the Judge Judy eye roll.

Cleaning our kitchen.

Pizza after the kids go to bed.

Swim lessons, bottles, diapers, and baths.

Laughing all the way through it.

And this:


I love you, Johnny.  Happy anniversary. ❤️



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Meet Lauren – A birthday story

As a young person, I didn’t have any visions of my wedding, or babies, or life with little rugrats in pigtails running around at my feet.

What I envisioned, truth be told, was a meathead husband (check) and a gaggle of teenage boys, a house full of sports gear, and always being mother-of-the-groom.

And then life actually happened.

In case you missed it, we welcomed our third little lady earlier this month.  Like my whole pregnancy, I’m still trying to wrap my head around the fact that there are three Tiny Humans under my care.  And the fact that they are all females?  I am so confused.

If you like birth stories, here’s how Lauren made her arrival.  If you aren’t interested in learning about my cervix, thanks for reading and we’ll see you next time. 😬

At 35 weeks, I began having regular contractions (3-4 times an hour, pretty much all the time).  There was some concern because Baby was still breech, and it was a little early, so my OB insisted that I take it easy, at least until 37 weeks.  At 36 weeks, after the awesome week of contractions, I was not dilating at all.

At 37 weeks, Baby was finally head down, and my (false) contractions continued at regular intervals.  The head was in place, I was a centimeter dilated, and I thought surely Baby was going to come out soon.  Tessa had arrived this early, we were ready, why not?

Because babies come when they want, that’s why.

A small amount of desperation set in after 37 weeks and 3 days passed by (the point at which Tessa was born). Keeping up with my kiddos felt pretty much impossible.  Every step I took felt like the baby’s head was going to fall out.  At 38 and 39 weeks, though these amazing false labor contractions continued, there was no change in my cervix.  When I hit 39 weeks, my doctor offered to do an induction, but I declined.

Babies come when they want, right?

Friends, I cleaned every freaking inch of my house between 38-40 weeks.  All my cabinets sparkled, drawers were organized and rearranged.  I ate all the spicy foods, I administered some acupressure.  I tried all the things, y’all.  Baby was not ready to come out.  The contractions continued.  My children were confused as to when the baby would be here.  We were all tired.  Welcome to the end of pregnancy, right?  Anyone who has had a baby has been there.

Then our 40 week appointment arrived.  I had a non-stress test (NST) which didn’t end up looking as good as we would like (baby’s heart rate had a few dips that shouldn’t be there).  My OB did a check of my cervix and said “hmm, well, I guess it’s still kind of one centimeter.  It doesn’t seem really like a one to me” (which struck me as a really odd statement).  However, because the NST didn’t look great, she sent us over to the hospital to have a longer test and possibly to be induced if things still didn’t look right.

Because babies come when they want…. unless they get evicted.

After a significant amount of time on the NST machine, and a thrilling conversation about the diminishing function of my placenta and again the “weird” dilation of my cervix, we decided that it was time for this little peanut to have a birthday.

The plan was to place Cervadil in order to get my cervix to prep for labor on its own.  After 12 hours with the Cervadil in place, at 2:30 in the morning, we would start some Pitocin and then eventually, have a baby.

I was beginning to wonder why I didn’t stop to have a sandwich on my way to the hospital.  Thankfully though, there was a marathon of Island Hunters on HGTV to pass the time.

My cervix responded well to the Cervadil.  Around 9:00, my contractions started on their own.  I think around one AM, my most favorite human being in the hospital showed up – the anesthesiologist.  I got my epidural, and after a long freaking day, I attempted to get some rest while we worked our way to 10 centimeters.

And then at 4 centimeters, my progress stalled.

So remember that “weird” cervix I was telling you about?  And the feeling that the Baby’s head was going to fall out for so long?  Well, the little stinker decided that she really wasn’t going to cooperate with coming out and moved her head out of place.  For a little while, we thought maybe she had turned around again and was breech.  They carted in an ultrasound machine to check and she was still head down, but without the head engaged where it should be.

Commence Birthing Ball Olympics.

And did I mentioned that my epidural was wearing off on one side?

God bless my awesome nurses, who moved me over and over again for hours, attempting to coax our stubborn little child into place.  The Pitocin was flowing.  My Island Hunters marathon had transitioned to Fixer Upper.  At 9:45 AM, there was still no change from 4 centimeters.  My OB (whom I love) told us that “it’s still just kind of a mess down there.”

Babies come when they want.

Then at 10 am, her head slipped into place.  And at 10:15, my water broke.  And by broke, I mean it burst like a water balloon.  Like you see in the movies.  Like if we had been wandering through Home Depot, they would have needed a very large mop.

At 11:00, I was at 10 centimeters.  At 11:15, I felt like it was time to turn off Chip and Joanna and deliver the baby.  And at 11:30, after about 3 pushes, little miss Lauren entered the world.

For the first time, I got to hold my baby as soon as she came out.  After all the unpleasantness of birth was cleaned up, we let Ellie come in to meet the baby for the first time.  She was so thrilled to have another sister – and even more than I ever could have expected, we were (and are) over the moon elated to have another little girl.

This life is not at all what I imagined.  Of course, I still have my meathead, and there’s still a chance that sports gear will take over my house (though watching my big girls try to be athletic makes that chance seem very, very slim), but holy cow, we need to start saving for three weddings.

Welcome to the world, Lauren Ann.  We are so thankful that you are here.

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Happy Sixth Birthday, Ellie!

I don’t really know what to make of having a six-year-old.  Every birthday does this to me.  I can’t wrap my brain around first grade, especially as I cradle her new baby sister, who looks just like her and wears all those itty bitty sweet little outfits that we had picked out for Ellie on our way home from the hospital after her birth.

When did my chubby little munchkin, whose nose and cheeks just begged for thousands of kisses, grow into this tall (TALL.), beautiful young girl??  Her personality has grown right along with her, and where once there was a goofy little toddler, now an inquisitive, serious, and dare-I-say dramatic school girl who loves to write and draw and ask her parents uncomfortable questions.

Why yes, Ellie, I would be glad to explain to you why boys don’t have vaginas.  In like, 5 years.


Ellie thrives on one-on-one attention and playing with friends who will pretend along with her.  She pulls Tessa, generally willingly and occasionally not, through endless rounds of “school” and “doctor’s office.”  She (like her mother) has a difficult time not calling the shots, not being first in line, not following her schedule.


As a matter of fact, at the beginning of the summer, I put together a plan for our days, with the intention of just getting the girls in the routine of cleaning something (Please. Anything.) on a daily basis.  On the fridge, The Schedule, according to Ellie, must be followed to a T.  No deviations.  Don’t you dare skip the school work.  

We do our best.


My sweet, sweet girl, with her big and bold feelings, is in a hurry to grow up and holding desperately to being a little one all at the same time.  I catch little glimmers of her teenage years from time to time – in her pretend phone conversations or playtime with her dolls.  It’s far too soon to tell what she’ll grow up to do, but we are in for a fun ride getting her there!


Around the age of two, when Ellie started asking us to chew gum, I told her she had to wait until she was six.  It was just some random age, for no real reason; it just seemed far enough in the future that it would never be here.  We stuck to it, and save for the few pieces slipped to her by Oma, she has not had much opportunity for gum chewing and it’s really the one thing that she is most looking forward to for her birthday.  Today at Target, I bought her a bunch of flavors so she can find the one she loves best, and she’s already learned that there is no chomping or she has to spit it out.  She’s ready.  I’m so not.

Happy gum chewing day, Girlfriend!!!  We love you so very much!!!! 

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Jump!

So many things…. let’s start here today:

For as strong a gross motor allergy as Tessa has, her desire to be able to jump has always been high – so high that I’d rank it right up there with “eating all the donuts” and “figuring out how to open the front door.”  We signed her up for Karate with Ellie through our park district.  At the end of class, when they would practice by jumping from one mat to the next, a small part of me was so sad to see her crouch down, expecting to jump like her peers, only to need the support of her aide and teacher to be lifted up across the divide.

Unlike me, it never got her down.  She developed her own methods, popping up from her crouch and raising up on her toes as high as she could, or dropping to her knees and pretending to be a frog.  She laughed gleefully each time she attempted to get airborne.

I hadn’t thought about jumping for a little while.  School is out for the summer and we declined Extended School Year services for Tessa.  In a nutshell, this means a summer without therapy.  She gets activity in through Karate and swim lessons – and life with her big sister is pretty much a 24/7 speech therapy session. Mostly though, we’re taking it easy.

And then this:

Did you see those sweet little toesies get airborne?!?

We work so hard for progress in every area, and she is making it.  Sometimes though, it just takes a little step back on our own part and letting her figure it out.  And when she does, well, it’s got us all jumping for joy. ❤️

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